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European Journal of Public Health, Vol. 27, Supplement 3, 2017
The Osteogenesis imperfecta in the Valencia Region,
Spain
Clara Cavero Carbonell
S Gimeno-Martos, C Pérez-Riera, L Páramo-Rodrı́guez, C CaveroCarbonell
Foundation For The Promotion Of Health And Biomedical Research Of The
Valencian Region (FISABIO), Valencia, Spain
Contact: cavero_cla@gva.es
Background
The objective was to determine the prevalence of the
Osteogenesis imperfecta (OI) in the Valencia Region (VR)
during the 2004 to 2014 period, to describe the hospitalization,
the medication use and the genetic characteristics of the people
affected, and to identify the fractures and the surgical activity
related to the disease.
Methods
From the Rare Diseases Information System of the VR patients
with the code 756.51 of the International Classification of
Diseases (ICD) 9th Revision-Clinical Modification and Q78.0
of the ICD 10th Revision were identified. A descriptive analysis
of sociodemographic and clinical variables was made and the
probability of confirmation and the prevalence was calculated.
Results
162 patients were identified with a diagnosis of OI. 145 of the
161 patients with clinical documentation available were
confirmed as cases.
The probability of confirmation was 89.5% and the prevalence
was 0.29/10000 inhabitants. 93.1% were Spanish and 54.5%
were women. The average age of detection was 27.7 years. They
were treated in 25 different hospitals. The most common type
of OI was type I (9.7%). 6.2% of the patients died, with an
average age of 60.8 years and the most common cause of death
was failure and respiratory complications (33.3%).
In the 13.4% of the cases closed reductions were made, in the
11.2% osteosynthesis was necessary and in the 15.5% any
surgery was needed. 21% of patients suffered one or more
femur and tibia fractures (11.3% and 9.7%, respectively) and
17.3% in the long bones of the arm. The 44.8% of patients
received treatment with biphosphonates and the 10.4% had
affected family members.
Conclusions
The percentage of confirmed cases of OI from the Rare
Diseases Information System is high, probably because this
disease has specific codes in the classifications. The prevalence
obtained is lower than that estimated by Orphanet and this
may be due to the non inclusion of minor cases (do not require
hospitalization) in this system.
Key messages:
The percentage of confirmed cases of OI from the Rare
Diseases Information System is high, probably because this
disease has specific codes in the classifications.
The prevalence coincides with the Sillencés research, which
is the reference study about osteogenesis imperfecta up to
now.
Global Psoriasis Coalition: Addressing the needs of
psoriasis patients in the NCD agenda
Vasilka Lalevska
V Lalevska, S Andersson
International Federation of Psoriasis Associations, Stockholm, Sweden
Contact: vasilka.lalevska@ifpa-pso.com
Non-communicable diseases (NCDs) represent one of the
biggest challenges in global health. These largely preventable
diseases are, paradoxically, also responsible for 70% of global
mortality and disability. To effectively prevent and control
NCDs, it is necessary to look at interventions that can lead to
sustainability.
One of the sustainable avenues is offered by psoriasis. Psoriasis
affects 125 million people globally. Often mistaken as a skin
condition, psoriasis is a severe, disabling, disfiguring NCD for
which there is no cure. The WHO has listed psoriasis among
the five major NCDs (together with diabetes, cancer,
cardiovascular diseases - CVDs and respiratory diseases).
However, psoriasis is not listed in the Global NCD Action Plan
(2013-2020), thus interventions on psoriasis are out of the
loop of the current NCD analysts.
Psoriasis brings a significant risk of developing co-morbid
conditions. People with severe psoriasis face 46% and 58%
bigger chances of developing diabetes and CVDs, respectively.
Recent research also connects psoriasis with cancer and
chronic obstructive pulmonary diseases. Interestingly, these
four mentioned diseases are the ‘big four’ NCDs that raise a
global concern.
Inspired to change the focus of the discussion, we would like to
present:
Our story: Global Psoriasis Coalition – latest programme
launched by the International Federation of Psoriasis
Associations (IFPA). The Coalition gathers diverse actors
such who, across diseases, sectors and policies, see an added
value of addressing psoriasis in the NCD discussions.
Our regulation challenge: the revision of the Global NCD
Action Plan. Knowing that psoriasis is strongly connected to
the ‘big four’, early screening of psoriasis patients could
prevent and control other NCDs.
We will also present a strategic framework on addressing psoriasis
as an NCD, and provide example of how investing in the
pathology of psoriasis brings a social return of investment (SROI).
Key messages:
Psoriasis is not a skin condition, but a severe, chronic noncommunicable disease. Psoriasis comorbidities include
other NCDs, such as diabetes and cardiovascular diseases.
The Global Psoriasis Coalition highlights that early screening of psoriasis patients for diabetes and cardiovascular
diseases could help in reducing the NCD burden.
Premature mortality in Russia is approaching
European levels
Elena Zemlyanova
E Zemlyanova, A Ivanova, T Sabgaida
Federal Research Institute for Health Organization and Informatics,
Moscow, Russia
Contact: ivanova-home@yandex.ru
Prevalence of risk factors and premature mortality (in ages
< 65) from non-infectious diseases in Russia is substantially
higher than in other countries of WHO European region. The
purpose is to determine population groups forming positive
risk factors and premature mortality dynamics lately.
Data
For mortality estimates we used data of official statistics, for
estimation of risk factors prevalence – data of national surveys
on living conditions.
Results
In 2011-2014 share of men and women using alcohol reduced
in all types of settlements, but up to 2016 it increased again
though didn’t reach 2011 levels. Group of people using alcohol
occasionally increased its share, and group of those using
alcohol every day reduced. Working population and especially
aged 16-29 years played the principal role in formation of
positive trend.
Smoking prevalence continuously reduced during 2011-2016.
Positive trends were observed both among occasional smokers
and heavy smokers, men and women. Along with a case of
alcohol, better dynamics in smoking cessation is more
characteristic to youth.
Premature mortality in Russia is substantially higher than in
WHO European region – nearly twice in men and by 1.5 times
in women. Since 2003 premature mortality in Russia started to
reduce and up to 2015 it reduced to a greater extent (by 40.1%
and 35.8% in men and women) than in European region. The
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