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Science Shop in Ankara

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A newly established
Science Shop in Ankara:
Sharing experiences
Evelyn S. Schaafsma (Pharm D)
Director Science Shop for Medicines
University of Groningen, The Netherlands
e.s.schaafsma@rug.nl
Turkey-Netherlands
Outline
•
•
•
•
Science Shops: what is it??!
Science Shop University of Groningen
Science Shop for Medicines
Examples of projects
Science Shop
www.livingknowledge.org
General concept
A Science Shop
in response
to
(is a unit that) provides
concerns experienced
by civil society.
В© Henk Mulder
Science
shop
actors &
factors
SCIENTIFIC
CULTURAL
POLICYMAKERS
HOSTS
Where ?
SUPPLY
DEMAND
STAFF
FUNDERS
SOCIO-POLITICAL
В© Henk Mulder
Dutch Science Shops
Groningen
University of
Utrecht (7x)
Erasmus
University
Rotterdam
Twente
Utrecht
Rotterdam Wageningen
University of
Groningen
(9x)
Technical
University of
Twente
Wageningen
Agricultural
University
Tilburg
Eindhoven
University
of Tilburg
Maastricht
University of
Maastricht
Technical
University of
Eindhoven (8x)
В© Henk Mulder
Science Shop - Wetenschapswinkel - Boutique de Science - Videnskabsbutiken Wissenschaftsladen - Bazar de las Ciencias
From the 70’s to the 00’s
70’s: Netherlands, (USA)
80’s: Australia, Denmark, England, Northern Ireland, Germany,
Austria, France, Belgium
90’s: Israel, Canada, Spain, Romania, Norway, Malaysia, South
Korea, Czechoslovakia, South Africa, New Zealand,
00’s: Belgium (renewed), France (renewed), South Korea
(renewed), Portugal
2005 initiatives: Greece, Estonia, Latvia, Iceland, Japan, Wales,
Scotland, Ireland, Turkey
Science
shop
actors &
factors
What
Hostinstitutes ?
SCIENTIFIC
CULTURAL
POLICYMAKERS
HOSTS
SUPPLY
DEMAND
STAFF
FUNDERS
SOCIO-POLITICAL
В© Henk Mulder
Organisation Forms
пЃ¶ University
Central Office
Faculty Office
пЃ¶ NGO
Separate entity
University links
пЃ¶ Community-University
Research Alliances
В© Henk Mulder
Science
shop
actors &
factors
SCIENTIFIC
CULTURAL
POLICYMAKERS
HOSTS
What
clients ?
SUPPLY
DEMAND
STAFF
FUNDERS
SOCIO-POLITICAL
В© Henk Mulder
Criteria
1. Not commercial. Public results.
2. Able to use results
3. No (full) financial means
В© Henk Mulder
Demand
Community/voluntary groups
Environmental NGOs
Local/regional authorities
Schools/pupils
Patient groups
Labour unions
Religious groups
Individuals (sometimes conditional)
Clients
of
Science
Shops
Other: student organisations, museums,
police, parliamentarians/political parties
Some: other research institutes, SMEs,
larger firms/industry
В© Henk Mulder
Science
shop
actors &
factors
What research
capacity
provided ?
SCIENTIFIC
CULTURAL
POLICYMAKERS
HOSTS
SUPPLY
DEMAND
STAFF
FUNDERS
SOCIO-POLITICAL
В© Henk Mulder
Supply
science shop staff
In % of
science shops
71
students
- voluntary
- course/diploma
- internship
34
71
pm
researchers
- voluntary
- paid
45
48
Research done by
В© Henk Mulder
Science
shop
actors &
factors
SCIENTIFIC
CULTURAL
POLICYMAKERS
HOSTS
SUPPLY
What do they
do for a living ?
DEMAND
STAFF
FUNDERS
SOCIO-POLITICAL
В© Henk Mulder
Mediation Tasks
1 Receive/solicit clients and (new) questions
2 Map the problem (articulation)
3 Preliminary research: Refer, Refuse, Advice
or Formulate (scientific) research
question (Incl. funds if required)
4 Find a (co-) supervisor
5 Find a student or researcher
6 Maintain communication and process
7 Facilitate useable presentation/publication of results
8 Help client implement results and formulate follow up actions
9 Make inventory of follow-up research/themes
10 Evaluation
В© Henk Mulder
Wetenschapswinkels
Science Shops
Wetenschapswinkels
Experiences > 25 years
at University of Groningen
The Netherlands
University of Groningen
Science Shops
Biology
Chemistry
Economic Sciences and
Business Management
Education & Youth Studies
History
Languages & Communication
Medicine and Public Health
Photo:
http://www.xray.chem.rug.nl/thomas/
Pharmaceutics
Physics
В© Henk Mulder
University of Groningen Network
Front of the main building of
the University of Groningen
Nine Science Shops
(14 staff, 8.2 fte)
Funded 60/40 by University Board
and Departments*
6-weekly meetings of coordinators
Policy, PR, bilateral projects
Joint activities
–
–
–
–
Photo: TIMCED Intermediu Ploiesti
Newsmagazine, website
Seminars, Conferences
Societal Assessment of Faculties
Obtaining questions through newspaper
Paid Board
(0.4 fte + Secretariat 0.2 fte)
В© Henk Mulder
p
TIMCED Intermediu Ploiesti
University of Groningen
Financing from Board of University
Regional image
Political/social awareness of students
Part of “Third Mission”: Knowledge Transfer
Financing from Faculty / Department
Practical education
Research Themes
PR
Science Shop
for Medicines
School of Pharmacy
Groningen University Institute for Drug Research
Science Shop for Medicines
•
•
•
•
Science Shops for Health
Clients & questions and output
Detecting unexplored research areas
Pro-active approach: themes
– Children
– Etnic minorities
• Ramadan and medication
Benefits
• Patient or consumer organizations:
Independent research of good quality at
low price
• Students: Apply theory to practice in
“own” project
• University: Detecting unexplored
research areas
Who came to the Science Shop
and what did they ask?
Safe use of drugs
has always been an import topic
Examples
• Adverse effects of Melatonin in Chronic
Fatigue Syndrome (2002)?
• DES hormone used in girls to stop growing?
(2000)
• Safe use of breastfeeding suppressants
(bromocriptine ea): Report and brochure
(1998)
• Hypothyroid patients complaining about
Thyranon change towards Thyrax (1992)
Melatonin:
experiences of users
• Client: patient group with CFS
• Problem: bad experiences with Melatonin (unlicenced
drug, food supplement)
• Research question: Experiences (good and bad) with
Melatonin, lit. review + questionnaires
• Done by Master student (3 months full time) and
science shop coordinator (3/4 year parttime)
• Involved expertise: Dep. pharmaceutical chemistry,
hospital doctor and nurse, Netherlands
Pharmacovigilance Centre
Other themes
• Effectiveness of medication:
– Alternative medicines: herbs, food supplements
– New drugs: biotech
• Drug Information for lay public
– 70’s: no info enough -> help find (new
contraceptives Implanon etc)
– Now: to much info -> find trustworthy info and
summarize in understandable language
Detecting unexplored
research areas: Third World
Several student
projects on production
of drugs in third world
пѓЄ
Resulting in a PhD
project on production
and storage of tablets
Detecting unexplored
research areas: Pregnancy
Student projects (80s)
пѓЄ
PhD project
(90s)
пѓЄ
Major research area in
Social Pharmacy
department (today)
Pro-active approach: themes
Questions within society not via patient
group or other NGO, because they are
(hardly) represented:
• Children
• Ethnic minorities
Children
• Health education to children about their
drugs: a survey among patient organisations.
• What kind of health education do you think
should be adressed regarding drugs and
children?
• Slection of questions -> one example chosen
for brochure
Ethnic minorities
• 10% of Dutch population non-native
background
• Cultural diversity in health care should
be addressed
• Interdisciplinary approach: intercultural
communication involved
Examples
• Drug information for refugees
• Drug information for deaf patients
• Ramadan and medication use
Deaf patients
Ethnic minority?? No, but:
Sign language is first
language and dutch
grammar differs
=> need for visual leaflet
DEAFMED: EU project
in collaboration with
Dr Yegenoglu (Hacettepe)
Dr Visser (Intercul. Comm.)
Ramazan and medication use
Ramadan and medication use
Why bother??
• Fasting and medication: suboptimal
pharmacotherapy or adverse effects
• Seen by health care workers in deprived
areas (first generation immigrants)
• Almost 1.000.000 moslims in NL
• Next years: fasting time a day will increase
up to 18 hours (Dutch summer)
Ramadan and medication use
• Several projects:
– Literature review
– Pharmaceutical Care project
– Comparative study Turkey-Netherlands
Pharmaceutical Care Project
• Aims to
guide muslim patients, their families, and
their caregivers in rational medication use
during ramadan, adapted to their religion
Pharmaceutical Care Project:
Multiple Intervention
• Individual counseling for muslim patients in
pharmacies, in collaboration with prescribers
– Invited before ramadan: diabetes
– During ramadan
• Educational meeting with
– pharmacy team
– GP’s
– invited patients
• “cultural mediators”
Pharmaceutical Care Project:
Results of Pilot
• Estimate: 70% of pharmacy visitors
insisted to fast, despite medical condition
• 86% (2005), 65% (2004) of fasting patients
were categorized as “at risk”
Pharmaceutical Care Project:
Results of Pilot (continued)
Outcome of counselling:
• 60% changed prescription
• 92% changed use
• Few referrals
• Patient interviews
Pharmaceutical Care Project:
Results of Pilot (continued)
Patient interviews
• Fast majority of patients think the
counselling of pharmacy is important and
useful
• 50% also received info from other sources
(incl. informal)
• Both pharmacy and doctor’s advice are
appreciated
• Religious leaders are hardly consulted for
advice
Comparative study: Turkey- Netherlands
• What can we learn from each other in both
countries?
– Turkey: Selen Yegenoglu
– Netherlands: Evelyn Schaafsma
• Interviews with health professionals, patients and
patient organizations on their experiences and
opinions on current practice about advice giving on
ramadan and medication use
• EU project: good rating, but not selected
• Thank you for your attention!
• Questions?
e.s.schaafsma@rug.nl
Good luck on the
Science Shop in Ankara!!
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