A newly established Science Shop in Ankara: Sharing experiences Evelyn S. Schaafsma (Pharm D) Director Science Shop for Medicines University of Groningen, The Netherlands firstname.lastname@example.org Turkey-Netherlands Outline вЂў вЂў вЂў вЂў Science Shops: what is it??! Science Shop University of Groningen Science Shop for Medicines Examples of projects Science Shop www.livingknowledge.org General concept A Science Shop in response to (is a unit that) provides concerns experienced by civil society. В© Henk Mulder Science shop actors & factors SCIENTIFIC CULTURAL POLICYMAKERS HOSTS Where ? SUPPLY DEMAND STAFF FUNDERS SOCIO-POLITICAL В© Henk Mulder Dutch Science Shops Groningen University of Utrecht (7x) Erasmus University Rotterdam Twente Utrecht Rotterdam Wageningen University of Groningen (9x) Technical University of Twente Wageningen Agricultural University Tilburg Eindhoven University of Tilburg Maastricht University of Maastricht Technical University of Eindhoven (8x) В© Henk Mulder Science Shop - Wetenschapswinkel - Boutique de Science - Videnskabsbutiken Wissenschaftsladen - Bazar de las Ciencias From the 70вЂ™s to the 00вЂ™s 70вЂ™s: Netherlands, (USA) 80вЂ™s: Australia, Denmark, England, Northern Ireland, Germany, Austria, France, Belgium 90вЂ™s: Israel, Canada, Spain, Romania, Norway, Malaysia, South Korea, Czechoslovakia, South Africa, New Zealand, 00вЂ™s: Belgium (renewed), France (renewed), South Korea (renewed), Portugal 2005 initiatives: Greece, Estonia, Latvia, Iceland, Japan, Wales, Scotland, Ireland, Turkey Science shop actors & factors What Hostinstitutes ? SCIENTIFIC CULTURAL POLICYMAKERS HOSTS SUPPLY DEMAND STAFF FUNDERS SOCIO-POLITICAL В© Henk Mulder Organisation Forms пЃ¶ University Central Office Faculty Office пЃ¶ NGO Separate entity University links пЃ¶ Community-University Research Alliances В© Henk Mulder Science shop actors & factors SCIENTIFIC CULTURAL POLICYMAKERS HOSTS What clients ? SUPPLY DEMAND STAFF FUNDERS SOCIO-POLITICAL В© Henk Mulder Criteria 1. Not commercial. Public results. 2. Able to use results 3. No (full) financial means В© Henk Mulder Demand Community/voluntary groups Environmental NGOs Local/regional authorities Schools/pupils Patient groups Labour unions Religious groups Individuals (sometimes conditional) Clients of Science Shops Other: student organisations, museums, police, parliamentarians/political parties Some: other research institutes, SMEs, larger firms/industry В© Henk Mulder Science shop actors & factors What research capacity provided ? SCIENTIFIC CULTURAL POLICYMAKERS HOSTS SUPPLY DEMAND STAFF FUNDERS SOCIO-POLITICAL В© Henk Mulder Supply science shop staff In % of science shops 71 students - voluntary - course/diploma - internship 34 71 pm researchers - voluntary - paid 45 48 Research done by В© Henk Mulder Science shop actors & factors SCIENTIFIC CULTURAL POLICYMAKERS HOSTS SUPPLY What do they do for a living ? DEMAND STAFF FUNDERS SOCIO-POLITICAL В© Henk Mulder Mediation Tasks 1 Receive/solicit clients and (new) questions 2 Map the problem (articulation) 3 Preliminary research: Refer, Refuse, Advice or Formulate (scientific) research question (Incl. funds if required) 4 Find a (co-) supervisor 5 Find a student or researcher 6 Maintain communication and process 7 Facilitate useable presentation/publication of results 8 Help client implement results and formulate follow up actions 9 Make inventory of follow-up research/themes 10 Evaluation В© Henk Mulder Wetenschapswinkels Science Shops Wetenschapswinkels Experiences > 25 years at University of Groningen The Netherlands University of Groningen Science Shops Biology Chemistry Economic Sciences and Business Management Education & Youth Studies History Languages & Communication Medicine and Public Health Photo: http://www.xray.chem.rug.nl/thomas/ Pharmaceutics Physics В© Henk Mulder University of Groningen Network Front of the main building of the University of Groningen Nine Science Shops (14 staff, 8.2 fte) Funded 60/40 by University Board and Departments* 6-weekly meetings of coordinators Policy, PR, bilateral projects Joint activities вЂ“ вЂ“ вЂ“ вЂ“ Photo: TIMCED Intermediu Ploiesti Newsmagazine, website Seminars, Conferences Societal Assessment of Faculties Obtaining questions through newspaper Paid Board (0.4 fte + Secretariat 0.2 fte) В© Henk Mulder p TIMCED Intermediu Ploiesti University of Groningen Financing from Board of University Regional image Political/social awareness of students Part of вЂњThird MissionвЂќ: Knowledge Transfer Financing from Faculty / Department Practical education Research Themes PR Science Shop for Medicines School of Pharmacy Groningen University Institute for Drug Research Science Shop for Medicines вЂў вЂў вЂў вЂў Science Shops for Health Clients & questions and output Detecting unexplored research areas Pro-active approach: themes вЂ“ Children вЂ“ Etnic minorities вЂў Ramadan and medication Benefits вЂў Patient or consumer organizations: Independent research of good quality at low price вЂў Students: Apply theory to practice in вЂњownвЂќ project вЂў University: Detecting unexplored research areas Who came to the Science Shop and what did they ask? Safe use of drugs has always been an import topic Examples вЂў Adverse effects of Melatonin in Chronic Fatigue Syndrome (2002)? вЂў DES hormone used in girls to stop growing? (2000) вЂў Safe use of breastfeeding suppressants (bromocriptine ea): Report and brochure (1998) вЂў Hypothyroid patients complaining about Thyranon change towards Thyrax (1992) Melatonin: experiences of users вЂў Client: patient group with CFS вЂў Problem: bad experiences with Melatonin (unlicenced drug, food supplement) вЂў Research question: Experiences (good and bad) with Melatonin, lit. review + questionnaires вЂў Done by Master student (3 months full time) and science shop coordinator (3/4 year parttime) вЂў Involved expertise: Dep. pharmaceutical chemistry, hospital doctor and nurse, Netherlands Pharmacovigilance Centre Other themes вЂў Effectiveness of medication: вЂ“ Alternative medicines: herbs, food supplements вЂ“ New drugs: biotech вЂў Drug Information for lay public вЂ“ 70вЂ™s: no info enough -> help find (new contraceptives Implanon etc) вЂ“ Now: to much info -> find trustworthy info and summarize in understandable language Detecting unexplored research areas: Third World Several student projects on production of drugs in third world пѓЄ Resulting in a PhD project on production and storage of tablets Detecting unexplored research areas: Pregnancy Student projects (80s) пѓЄ PhD project (90s) пѓЄ Major research area in Social Pharmacy department (today) Pro-active approach: themes Questions within society not via patient group or other NGO, because they are (hardly) represented: вЂў Children вЂў Ethnic minorities Children вЂў Health education to children about their drugs: a survey among patient organisations. вЂў What kind of health education do you think should be adressed regarding drugs and children? вЂў Slection of questions -> one example chosen for brochure Ethnic minorities вЂў 10% of Dutch population non-native background вЂў Cultural diversity in health care should be addressed вЂў Interdisciplinary approach: intercultural communication involved Examples вЂў Drug information for refugees вЂў Drug information for deaf patients вЂў Ramadan and medication use Deaf patients Ethnic minority?? No, but: Sign language is first language and dutch grammar differs => need for visual leaflet DEAFMED: EU project in collaboration with Dr Yegenoglu (Hacettepe) Dr Visser (Intercul. Comm.) Ramazan and medication use Ramadan and medication use Why bother?? вЂў Fasting and medication: suboptimal pharmacotherapy or adverse effects вЂў Seen by health care workers in deprived areas (first generation immigrants) вЂў Almost 1.000.000 moslims in NL вЂў Next years: fasting time a day will increase up to 18 hours (Dutch summer) Ramadan and medication use вЂў Several projects: вЂ“ Literature review вЂ“ Pharmaceutical Care project вЂ“ Comparative study Turkey-Netherlands Pharmaceutical Care Project вЂў Aims to guide muslim patients, their families, and their caregivers in rational medication use during ramadan, adapted to their religion Pharmaceutical Care Project: Multiple Intervention вЂў Individual counseling for muslim patients in pharmacies, in collaboration with prescribers вЂ“ Invited before ramadan: diabetes вЂ“ During ramadan вЂў Educational meeting with вЂ“ pharmacy team вЂ“ GPвЂ™s вЂ“ invited patients вЂў вЂњcultural mediatorsвЂќ Pharmaceutical Care Project: Results of Pilot вЂў Estimate: 70% of pharmacy visitors insisted to fast, despite medical condition вЂў 86% (2005), 65% (2004) of fasting patients were categorized as вЂњat riskвЂќ Pharmaceutical Care Project: Results of Pilot (continued) Outcome of counselling: вЂў 60% changed prescription вЂў 92% changed use вЂў Few referrals вЂў Patient interviews Pharmaceutical Care Project: Results of Pilot (continued) Patient interviews вЂў Fast majority of patients think the counselling of pharmacy is important and useful вЂў 50% also received info from other sources (incl. informal) вЂў Both pharmacy and doctorвЂ™s advice are appreciated вЂў Religious leaders are hardly consulted for advice Comparative study: Turkey- Netherlands вЂў What can we learn from each other in both countries? вЂ“ Turkey: Selen Yegenoglu вЂ“ Netherlands: Evelyn Schaafsma вЂў Interviews with health professionals, patients and patient organizations on their experiences and opinions on current practice about advice giving on ramadan and medication use вЂў EU project: good rating, but not selected вЂў Thank you for your attention! вЂў Questions? email@example.com Good luck on the Science Shop in Ankara!!